Posted for general interest - - The original note follows - - From: Susan Evoy <evoy@pcd.Stanford.EDU> Newsgroups: comp.org.cpsr.announce Subject: Health Care Privacy Alert Date: 10 Aug 1994 02:05:14 -0700 Sender: al@snyside.sunnyside.com FYI, please respond directly to the phone number below. Do not inquire of CPSR about the Coaltion for Patient Rights. ALERT The health care legislation proposed by Gephardt in the House and Mitchell in the Senate contains provisions which would establish a national health care data network and override most state medical confidentiality laws. All health care providers, whether paid by insurance or not, will be required to provide the network with data from the patient medical record after every clinical encounter. (The data elements will not be limited to what is necessary for billing purposes.) A very weak "privacy" (or "fair information") code will regulate the redisclosure of such patient-identified information. The law will permit person-identified information to be made available in various circumstances to law enforcement officials, medical and social studies researchers, and government authorities without the knowledge or consent of the patient. These legislative provisions are being promoted as administrative simplification and cost-saving measures, but they will seriously erode patient privacy. Unfortunately the general public has not been informed about these sections of the health care reform bills. Legislation of this kind requires intensive debate and should not be folded into a bill to extend insurance coverage and reform health care financing. Contact your Representative and your Senators to urge that the "Administrative Simplification," "National Health Care Data Network," and so-called "Privacy" and "Fair Information Practices" sections of these bills be deleted. The general telephone number for Capitol offices is 202, 224-3121. Watch for further updates! You may contact us at 617, 433-0114. Coaltion for Patient Rights, Massachusetts --- CPSR ANNOUNCE LIST END ---